Everything you wanted to know about Optune (but were afraid to ask)

Now that I am back on Facebook (yay!) A few people have been interested in Optune, the new treatment I am undergoing. Here are a few questions answered about this fascinating device. In the interest of education and passing on what I am learning, I am using some information from the patient packet to complete this. I am having a bit of trouble getting pictures on here, but I hope to put them here eventually.

What is Optune?
Optune is a treatment for glioblastoma patients 22 years or older. Optune delivers electric fields (called TTFields) that stop cancer cells from dividing and also destroying some cancer cells. It has been proven that, in conjunction with chemotherapy like Temodar, it has extended survival rates for GBM patients.

What does it look like?
The unit itself is in a small bag that can go over the shoulder, or can be carried hand-held. There is also a backpack available to carry the device.It is connected to four arrays that adhere to the scalp. It can be powered by electricity via a wall plug (ideal for sleeping or work), or with lithium-ion batteries for portability. The unit comes with four batteries, and a charger that holds three of them.

Does it hurt to wear it?
No, if it is applied correctly. The only thing I feel is a small amount of warmth from the arrays.

How do you put it on? 
First, your scalp needs to be completely shaved. An electric razor is included that seems to work well. Next, you need to swab your scalp with isopropyl alcohol. Then, you apply the four arrays. The location and placement of the arrays depends on the location of the tumor and the size of the patient's head. This process needs to be repeated with new arrays every 2-4 days depending on hair growth.

Are there any side effects?
Not really. Some patients have complained about sores and irritation on the scalp, and that is usually caused by too much hair on the scalp. If you shave your head and replace the arrays regularly, you should be able to avoid this. Luckily, I have one of the most anal caregivers you can possibly have.

How often are you supposed to wear it?
The FDA recommends 18 hours per day minimum. Optimum is 22 hours per day. You are supposed to sleep with the device on. Aside from the first night, I have had few problems sleeping with it, even while using it with a CPAP (for sleep apnea).

Can you wear something over the arrays?
Yes, you can wear a breathable wig or hat over the arrays.

Can it get wet?
No, you should take it off if it rains, and take it off or use a shower cap when bathing.

Can you talk on a cell phone while using Optune?
Yes. There have been no reported problems related to using the Optune device with a cell phone.

Does insurance cover Optune?
Although the device is approved by the FDA, the actual cost of the device and supplies is very high. The supplier itself provides financial support, and we were lucky enough that our medical insurance (through Penn State) approved it right away. Jaci thinks it is because my file was "flagged" by the insurance company because they did not approve a head CT back in January, and we could sue them if we wanted to.

Can Optune be used for other types of cancer?
As of now, it is used exclusively for GBM. They are supposedly working on adapting Optune to treat lung cancer, using an array that adheres to the chest.

The website Optune.com also provides a lot of great information and some useful testimonial videos.

Any other questions, please ask!

Hurricane Harvey: Helpers and Non-Helpers

The largest and costliest natural disaster in American history is still taking place as Harvey tears through the U.S. Like any disaster, this is bringing out the best and worst in people. Once again, I will take the advice of Fred Rogers and identify the helpers.

All rescuers and emergency workers: Self-explanatory. I would like to single out Houston police officer Steve Perez, who was swept away by floodwaters on his way to work.

The bakers at El Bolillo: Mexican bakers were trapped in their bakery, so, to keep themselves occupied, they baked loaves of bread for two days to feed flood victims. As one Facebook user said, "These people are as sweet as their bread."

Generous celebrities: Sandra Bullock gave $1 million to flood victims. Leonardo DiCaprio donated $1 million. Ellen DeGeneres donated $1 million. Miley Cyrus donated $500,000. Kevin Hart donated $50K and rallied other celebrities to donate to hurricane victims. Dwayne Johnson also pledged $50K. DJ Khaled, Nicki Minaj, J-Lo and A-Rod each pledged $25K. Houston Texans player J.J. Watt started a fund for hurricane victims. His goal was to raise $2 million, and so far, he has raised more than $10 million.

Jim McIngvale: This owner of a chain of furniture stores opened up several of his locations as shelters, and allowed people to sleep on the brand new furniture he was selling.

Shelter workers: Many people are volunteering their time to give people a place to stay after their homes have been flooded or destroyed.

The jury is still out...

President Trump: I give him credit for acting somewhat presidential during his visit to Texas, and his personal donation of $1 million. I think he should have met with some of the victims, although he gave the valid excuse that he didn't want to interfere with rescue operations, although I think the real reason is that Melania didn't want to get her designer shoes muddy.

Tom Llamas: This ABC reporter snitched to the police on looters entering a supermarket to police and was savaged on social media. Some argue that the people were starving and needed food, and others argued that the looters were breaking the law. I think this needs to be further investigated, and questions should be asked like "Did these people have easy access to food and shelter," and "Was this enough of an emergency to allow the taking of items from a business?"

Non-Helpers:

Joel Osteen: This piece of subhuman slime, who claims to be a good Christian, did not let flood victims stay in his 20,000 seat megachurch at first. He didn't let people in until he got bad press and people began to throw shade on him through social media. He, along with the equally contemptible Creflo Dollar, practices the so-called "prosperity theology," which states that good, pious Christians will be rewarded with material gain. So, according to this theory, are poor people bad Christians?

Looters: People should not use a natural disaster to take people's belongings.

Price gougers: $5 for a bottle of water. Up to $99 for a case. $10 per gallon for gas. It takes a true a-hole to use a natural disaster for financial gain.

Chris Christie: The New Jersey governor lambasted Texas senator Ted Cruz for asking for billions in disaster funding after voting against funding for East Coast states after superstorm Sandy. I am no fan of Ted Cruz, but this criticism is coming from a guy who deliberately closed on-ramps to the George Washington Bridge as an act of revenge, and has a lower approval rating than Trump.